Opening Your Heart

A couple of years ago, I attended a worship service at a wonderful church in Pennsylvania.  I arrived a few minutes late and found the congregation standing for the opening hymn.  I took my place in one of the pews and stood along with the rest of the congregation.  We proceeded to stand for the next several minutes while the minister made several pronouncements and we sang a second hymn.  I grew a little tired and began thinking about how good it would feel to finally sit.  I looked around the sanctuary and saw other members who I imagined were thinking the same thing.  I also reflected on those in the congregation who were physically unable to stand and how they must feel, having to sit all this time while everyone around them was on their feet.

This was one of many moments I have had in congregations across our region where I questioned our sense of hospitality toward those who have varying abilities…in mobility, functionality, and interrelatedness.

One of the keys to growth in our congregations and in our faith movement is our willingness to be more accessible and more inclusive of people with varying abilities.  According to the National Organization on Disability, people with disabilities are very likely to say their faith is important to them, but are more likely to not attend services due to accessibility issues. With the aging of the American population, they point out, the situation is becoming an increasingly significant factor in worship community vitality.

Part of the problem, certainly, is physical barriers.  Steps that people can’t climb; sound systems that people can’t hear; hymnals that people can’t read.  According to Ralph Adams Cram, architect and critic of American church design, places of worship... “were to be spiritual oases, set apart from their pedestrian environment through substantial, soaring walls and monumental stairs approaching impressive entrances well above the street. Unfortunately, our legacy is daunting stairs, heavy doors, and soaring walls. Much as our hearts may want to welcome everyone to enter our halls 'as a homecoming' the reality is that we are sometimes confronted with architectural designs that make hospitality a difficult undertaking, to say the least.“

While it may be cost prohibitive to make large structural changes, most accommodations require little or no outlay of money.  The biggest investment is not in money, but in the effort to find creative ways of enhancing the worship experience.  Make sure there are spaces in the sanctuary for wheelchairs; invest in assistive listening devices (they’re not as expensive as you may think); have several orders of service in large font available; ensure that you have enough accessible parking spots near the building; ask people during the worship service not to stand, but to “rise in body or in spirit” or introduce more “seated” hymns.

Here are some additional ideas for creating a more hospitable and inclusive environment:

·        Always use microphones (even if someone says they don’t need one)

·        Encourage speakers, worship associates, etc. to speak loudly and clearly

·        Raise the pulpit so that all can see

·        Make sure there is accessibility to the pulpit so that people with mobility limitations can speak or lead the service

·        Have a wheelchair or two donated and make it available

·        Wear name tags all the time for people with memory problems

·        Record services and make them available. Often a CD can be created instantaneously; or have them available on your website.

·        Hand out printed versions of the sermon.    

In his book, Year of Our Lord: Faith, Hope and Harmony in the Mississippi Delta, T.R. Pearson tells the story of Lucas McCarty, a young white man born with severe cerebral palsy who uses a wheelchair but also gets around by walking on his knees with the help of knee pads worn over his blue jeans.  He shouts and makes vocal sounds, but for the most part communicates through an electronic language device.  Lucas became a member of the Trinity House of Prayer, a small, poor African American congregation.  He was embraced by the congregation and was in no way considered out of place or disruptive.  Lucas even joined the choir.  Pearson writes, “Without exception, Trinity’s members treated Lucas with unstudied compassion. At no financial cost to the congregation — no special programs, no architectural alterations— they demonstrated that making people with disabilities, even severe disabilities, feel a part of them is within reach of every house of worship. Sometimes it's not about building a ramp. Sometimes it really is about opening up your heart.” 

May it be so.

Mark Bernstein

CERG Growth Consultant and UUA Liaison to Equual Access

Blazing Trails

Samuel G. Howe

It will come as no surprise that many Unitarian Universalists have been instrumental throughout history in advancing the cause of people with varying abilities. Some of the names are better known: Dorothea Dix and Samuel G. Howe who, among other accomplishments, established the Perkins School for the Blind in Boston and was recognized as the country’s leading expert on the subject.  Others are lesser known, but no less important in raising consciousness, improving services, and gaining greater acceptance of people with disabilities in society.

While some of his techniques may have been suspect (he was a great proponent of bloodletting to cure ills, for example), Benjamin Rush was a pioneer in the study and treatment of mental illness.  Rebuffed when he protested the inhuman treatment of people with mental illness at Pennsylvania Hospital, he obtained state funding to create a ward for the “insane” at that facility and began a practice that revolutionized the way we think of people with mental illness.  In 1812, he wrote the book Medical Inquiries and Observations, Upon the Diseases of the Mind, which was a standard reference for seventy years and earned him the title of “the father of American psychiatry.”

Dr. Martha May Eliot was a leader in the development of health services for mothers and children.  While on staff at the Department of Pediatrics at Yale, Dr. Eliot helped to develop the Division of Child Hygiene and collaborated in the drafting of the first Maternity and Infancy Act which required states to extend and improve services for mothers and children and for “handicapped” children.  In her report to Congress in the mid-1950’s, Dr. Eliot identified children with mental retardation as a program priority.  Largely through her initiatives, by 1955, services for people with mental retardation were a priority within the federal government.  Since 1964, the American Public Health Association has awarded the Martha May Eliot Award to deserving individuals who have provided extraordinary health services to mothers and children.

T. Berry Brazelton, M.D. has a long and distinguished history in the field of primary care pediatrics and child psychiatry.  An author of more than 200 scientific papers and chapters, Dr. Brazelton has been influential in advocating the importance of early intervention to at-risk infants and their families.  Among other honors, he was appointed in 1989 to the National Commission on Children by the U.S. Congress, where he advocated for better services to disadvantaged children.  His Neonatal Behavioral Assessment Scale is used worldwide to assess the physical and neurological responses of newborns as well as their emotional well-being and individual differences.

These are just a few of the stories of Unitarian Universalists living out our faith in word and in deed…and helping to make the world a better place for people of all abilities.

What's In a Word? by Carolyn Cartland, Vice President of Equual Access

Carolyn Cartland

When the Equual Access board chose the monthly theme for March a few months ago, we didn’t know how appropriate it would be. The March theme we selected, “What’s in a Word? Do the Words We Use Matter?”, is an apt description of the discussion now taking place on the “Standing on the Side of Love” blog. You may have seen it; if not, I recommend it. We are all invited to comment on whether the use of the word “standing” may be alienating to people with disabilities, how this issue may be impacting folks in our communities, and how ableism has affected our lives. I encourage everyone to make their opinions known below, on the Equual Access blog or on Access-l, the UU open forum for people who are interested in matters relating to accessibility. You are invited to join others who are committed to creating a faith community in which all people are truly welcomed into all aspects of congregational life. for UU. To view the sermon which initiated this conversation, go to the sermons web page for the Unitarian Society of Hartford, Connecticut and click on "2-12-12 Standing on the Side of Love - Rev. Katie Lee Crane."

At the Equual Access board meeting on March 7, we discussed this topic. We decided that words do matter to us, that words can change behavior and open minds, and that certain language presents opportunities to increase awareness of “the other” while other uses of language can limit understanding of others’ experiences. We understand that, initially, it may seem as though we are being “nit-picky”, “politically correct”, or “overly sensitive”. We are sympathetic to that perspective but weren’t those same comments made when women first objected to the sole use of the pronoun “he” in UU hymns, readings, and sermons? Weren’t similar comments made when the GBLTQ community objected to words that they deemed offensive? Who gets to decide if a word is offensive or not…the person offended or the person using the word? How do we show our belief in the “inherent worth and dignity of every person” if not by the language we use?

At our board meeting, we decided to pursue this conversation. We believe it is a valuable one for all of us, those with disabilities and those without, because at the very least it may open minds and hearts by providing a different perspective on the experiences of those whose lives are different from our own. Ableism, like sexism, heterosexism, racism, ageism, and all other forms of oppression, is alive and real in our culture; as in all forms of oppression, language is one of its most powerful tools. We encourage everyone to use this powerful tool in ways that are respectful, inclusive, and constructive. Whether SSL ultimately chooses to remove the word "standing" from the name of this social justice campaign or not, we believe this dialogue is necessary for the campaign to be inclusive and respectful of all people.

How Are Accessibility and Justice Connected?

Justice is an integral part of doing right. Of course, justice is more than defending others or setting things right. Justice includes the concept that things will be as fair as possible. One instruction on just behavior is as follows:

Learn to do right; seek justice.

Defend the oppressed.

Take up the cause of the fatherless;

plead the case of the widow.

It is important that as Unitarian Universalists, we examine the application of fair and justice practices to all levels and types of work that we do. An attentive examination of the treatment of disabled people, both in congregations and beyond, will show that there are many ways that people with disabilities can be oppressed, can need their cause to be taken up, or could benefit from having their case passionately pled.

Consider that in a traditional justice setting, on January 25, 2012, United Cerebral Palsy of Oregon and Southwest Washington filed a class action lawsuit against Governor Kitzhaber and top managers at the Department of Human Services. The lawsuit alleges that more than 2,300 Oregonians with mental or physical disabilities have been placed in sheltered employment situations in which they work for less than minimum wage and have almost no contact with non-disabled peers. A favorable outcome in this lawsuit could begin a revolution of fair wages and inclusive employment.

What does the pursuit of justice mean for congregational life? At least at my church, FirstUnitarian Church of Portland, we are fond of saying that the doctrine of the church is Love. I believe people expect that to be true. People assume that disabled congregants and visitors to the congregation will be treated fairly. It isn’t always apparent to the congregation when access is missing. But when one person comes to church, but they can’t hear the sermon well enough to understand it because there is no assistive listening equipment available, is that fair? When another comes to church but they do not feel welcome and valued because there are barriers to their entry or to their seating, is that fair? For most of these kinds of problems, individual attendees will not institute lawsuits meant to rectify problems and include the largest number of people possible.

The solution must lie with the church itself and with the congregation itself. The church must use the broadest means of inclusion possible, whether this means sign language interpretation or large print bulletins, or even remodeling to allow people with mobility issues access to all the parts of the building. There is one small congregation on the Oregon coast undertaking just such a project. In order for people using wheelchairs to gain access to the upper level of the church building, the church will need a lift. Even though the congregation is not a large one, they press on to finance the change by collecting cans and taking other steps toward the goal.

Accessibility matters because the central tenets of Unitarian Universalism include the ideas that divine Love is for everyone, and everyone is loved the way they are. This means now, not when it is convenient to include a door opener or when there is a surplus of money to install a needed chair lift. Right now, anyone may come. This means that for now, until the configuration of the building matches its purpose and possibility, we may have to be creative in broadcasting services to accessible parts of church campuses or resourceful in finding sign language interpreters for services or events. The alternative is offering God’s limitless love to those who have able or mostly able bodies; and that’s no alternative at all.

Theresa Soto is a member of First Unitarian Church of Portland, a member of EqUUal Access, a thinker, and a maker. On Twitter: @titasoto and blogs at http://inexplicablebeauty.tumblr.com/http://inexplicablebeauty.tumblr.com/