The Ins and Outs of Mainstream Life

Two contrasting stories caught my attention this week.  One exemplifies the continuing efforts to include people with disabilities in mainstream life through various media forms.  The other dramatizes the fact that, in reality, people with disabilities are often excluded, or forgotten, from mainstream life.

The good news is that Archie has a new girl friend...and she has a disability.  After more than 70 years, the venerable Archie comic strip has finally added a person with a disability to the gang from Riverside.  Her name is Harper, cousin of Veronica (my favorite was always Betty.  Stop me when I've exceeded the nerd quotient) and she uses a wheelchair.  She is described as having a spunky personality and, according to the Archie Comics people, does not let her disability define her.  Good for you, Arch!

When we move away, however, from the colorful pages of a comic book to the black and white pages of real life, we see news that is not as positive.  According to the National Council on Disability, as reported in a recent article in Disability Scoop, serious barriers continue to jeopardize the well-being of people with disabilities in the wake of disasters and other emergency situations.  Many 911 systems are still unavailable by text.  Shelters and televised emergency announcements often lack sign-language interpreters for those who are deaf.  Broadcast alerts feature language that is unclear for individuals with intellectual disabilities.  Evacuation maps and websites with emergency information are inaccessible to people with sight impairments.  Said Jeff Rosen, chair of the National Council on Disability, "The concerns of people with disabilities and others with access and functional needs in emergency situations are frequently overlooked, minimized or not even recognized until after the fact."  The agency is recommending that several federal agencies work together to establish guidelines for communicating with people with disabilities in emergency situations.  They are also suggesting more oversight, training and collaboration with the disability community.

Maybe Harper, Archie and the gang can help with that.

Mark Bernstein
Growth Consultant, Central East Regional Group and UUA Liaison to Equual Access

The Beginning of a Beautiful Friendship

The Disability/Ability Action Program is under way and so Unitarian Universalism begins a new chapter in its commitment to inclusion of people who historically have been on the margins of society.  A collaboration of Equual Access and the UUA, this groundbreaking program challenges congregations to welcome, embrace, support and integrate people with disabilities and their families into congregational life. 

Congregations seeking certification will conduct an assessment of accessibility and inclusion of people with disabilities, create an action plan of worship, workshops and projects, have that plan approved by the Disability/Ability Certification Committee and then implement the plan. When the plan has been fully implemented, the congregation can vote to be recognized as a congregation with a Disability/Ability Action Program certificate.  The program is designed to meet the needs of the entire congregation and includes workshops and activities for children and youth as well as adults.

Ten congregations are currently participating in the two year pilot project:

First Unitarian Universalist Congregation of Ann Arbor, MI
First Parish in Bedford, MA
The Unitarian Universalist Congregation of Buffalo, NY
First Parish Cambridge, MA
First Parish Kingston, MA
The Unitarian Universalist Church of Las Cruses, NM
The Unitarian Universalist Congregation in McHenry, IL
The Congregational Society, Unitarian Universalist Peterborough, NH 
Unitarian Universalist Fellowship of Raleigh, NC
First Unitarian Universalist Church of Rochester, MN

The plan is for the project to be offered to congregations around the country in 2015 to coincide with the 25^th anniversary of the Americans with Disabilities Act.

Beautiful friendship, indeed.

For more information about the Disability/Ability Action Program, contact me at mbernstein@uua.org or Reverend Barbara Meyers at bfkmeyers@prodigy.net.

With respect,

Mark Bernstein

Consultant, Central East Regional Group and UUA Liaison to Equual Access

The (Star)Bucks Stops Here

In early March of this year, a group of deaf people were holding their monthly meeting at a Starbucks in lower Manhattan.  Part of a national effort called Deaf Chat Coffee, they were gathered together to socialize over coffee and pastries purchased at the coffee outlet.  Suddenly, their meeting was interrupted by police officers who had been summoned to the store by Starbucks workers.  The workers claimed that the group was creating a disturbance, conducting a meeting without a permit, and were not purchasing items from the store.  None of these allegations were true and the police officers apologized to the group, finding no illegal conduct.  In addition to harassing the group by calling the police, one Starbucks employee allegedly laughed hysterically at the speech of one member of the group and other deaf customers claimed that they were refused service.  In one case, a Starbucks employee who knew some sign language tried to assist the deaf customers and was reprimanded by another employee.

When a complaint was filed with Starbucks CEO Howard Schultz and other upper management staff, an executive apologized and tried to assuage the group by offering them a preloaded Starbucks gift card.    That wasn’t enough for these customers and they promptly filed a lawsuit, now pending in Federal Court.  (To their credit, Starbucks subsequently published a post on their website decrying discrimination in any form and outlining the ways in which they intentionally support Deaf partners and customers.)  http://www.starbucks.com/blog/starbucks-on-inclusion-of-deaf-community/1262

For those Unitarian Universalists who don’t think that matters related to inclusion of people with disabilities is a social justice issue, think again.  If this action had been perpetrated against a group of LGBT persons or persons of color, the uproar would have been deafening (no pun intended).  But because it happens to a group of people whose rights are not nearly trumpeted as much as those of other marginalized groups, it gets a 10 second spot on the local news right before sports and weather.

There are a group of UU congregations who are planning a joint worship event in the fall.  The idea was raised to hire a sign language interpreter for attendees who are deaf.  I was told that there was resistance to the idea since some members of the planning committee felt that it wasn’t necessary.  Thanks to the persistence of one member of the committee, the idea was adopted and the interpreter was hired.

We have a long way to go in recognizing and acknowledging the rights of people with disabilities, both in the outside world and within our Unitarian Universalist communities.  Let’s start talking about it in our congregations.  I’ll be happy to discuss it with you anytime, perhaps over a cup of coffee?

  

With respect,

Mark Bernstein, CERG  Consultant and UUA Liaison to Equual Access

What's In a Name?

It was Mark Twain who wrote that “…language is a treacherous thing, a most unsure vehicle…” For people with disabilities and their allies, the struggle over language is on-going. There are those who insist on “people first” language as the means to convey respect for the individual and the acknowledgement that one is not defined by his or her disability, but by their deeds and their character. On the other side are those who say that we spend too much time worrying about labels and images and instead should be focusing on effecting concrete societal changes for a group that has historically been marginalized and discriminated against. “It doesn’t matter what you call us (or them)”, they say. “What matters is how we (or they) are treated.”

Personally, I align with those who believe that language is important; that how we refer to people often suggests and defines how we treat people. And so we continue to search for labels and titles that command greater respect and reduce the stigma attached to people with disabilities. For example, 43 states so far have taken steps to remove the word “retarded” from their laws, conceding that the word “retarded” is outdated and has become offensive. In most cases, the word was replaced with the term “intellectual disability.”

It is in this context that I applaud the Unitarian Universalist Association Board of Trustees for voting to place on the 2014 General Assembly agenda, new by-laws language related to inclusion. In Article II: Principles and Purposes, the current language reads, “The Association declares and affirms its special responsibility and that of its member congregations and organizations to promote the full participation of persons in all of its and their activities and in the full range of human endeavor without regard to race, ethnicity, gender, disability, sexual orientation, age, language, citizenship status, economic status, or national origin and without requiring adherence to any particular interpretation of religion or to any particular religious belief or creed.”

The proposed language reads, “Systems of power, privilege, and oppression have traditionally created barriers for persons and groups with particular identities, abilities and histories. We pledge (to do all we can) to replace such barriers with ever-widening circles of solidarity and mutual respect. We strive to be an association of congregations that truly welcome all persons and commit to structuring congregational and associational life in ways that empower and enhance everyone’s participation.”

The latter paragraph is a call to action. It replaces the word “disability” with “abilities.” It puts into context the struggle to advance the rights of people who have historically been marginalized. It calls on all congregations to welcome everyone into circles of respect, empowerment and participation in congregational life.

We in Equual Access have the opportunity to lead the way in supporting the UUA in this commitment. The UUA-Equual Access partnership is strong and the next few years will see a growing and a cementing of that relationship. The only language that will matter as we move forward is “cooperation”, “collaboration”, and “courage.”

With respect,

Mark Bernstein
CERG Growth Consultant and UUA Liaison to Equual Access

Dawning Future

The Unitarian Universalist Association is moving its headquarters, opening up virtual and physical space for communication, inclusion and engagement. The new headquarters offers opportunities for people, staff and volunteer lay leaders, with disabilities that were not possible before.

Rob Molla, UUA Director of Human Resources contacted the UUA staff liaison for EqUUal Access Mark Bernstein a few weeks ago. Mark met with Rob and had a preliminary conversation to discuss general issues related to accessibility as outlined by the EqUUal Access Board of Directors. Following this meeting, Rob said he would be back in touch with an invitation to representatives of EqUUal Access to tour the building and make recommendations.

On Tuesday, March 12, Suzanne Fast, Vice President of EqUUal Access, Carol Agate, EqUUal Access Treasurer, and Barbara Ceconi toured the new building. They identified a list of needed accommodations, which Rob documented, distributing copies to Peter Morales, Harlan Limpert, Kay Montgomery, Tim Brennen, and Mark Bernstein. Near the end of the tour, Rob indicated that there would be ongoing consultation with EA. The building has been gutted by the current owner, and the UUA is working with an architect.

Politics as Usual

Former Senator Bob Dole, at right in a wheelchair, entered the Senate with his wife to support a United Nations disabilities treaty.

In late November of this year, a news story appeared in USA Today that received very little attention elsewhere.  The Senate rejected a United Nations treaty banning discrimination against people with disabilities.  This failure to ratify the UN Convention on the Rights of Persons with Disabilities was purely political.  It was essentially done in by a coalition of Republican legislators who balk at anything that has to do with the UN.  This unfortunate happenstance represents a lost opportunity for the United States, who has led the way in creating greater opportunities for people with disabilities, to be seen as a champion for the rights of people with disabilities in the rest of the world. 

I contacted Bruce Knotts, Director of the Unitarian Universalist Association United Nations Office.  He responded promptly and informed me that..."we very much support U.S. ratification of all UN treaties.  It was shameful that the senate failed to ratify the UN Convention on the rights of people with disabilities."

While the Senate vote is disappointing, it is heartening to know that our UUA-UN office is advocating for people with disabilities and serving as our voice in speaking out on this critical issue.

Mark Bernstein

CERG Growth Consultant and UUA Liaison to Equual Access

Embracing the Child in Our Beloved Communities

Through the financial support of the UUA, the author and educator Sally Patton has been offering workshops on creating welcoming ministries for all families that want to attend our Unitarian Universalist Congregations. Entitled Involve, the workshop is designed to train religious educators, ministers and lay leaders to minister to children with different ways of learning, being and knowing and insure their successful inclusion into congregational life. So far this year, Sally has presented her workshop in the San Francisco area and in Westchester County, north of New York City. On May 19th, Sally will be at the Unitarian Universalist Church of West Chester, a suburb of Philadelphia. For those in that area, registration will be open until May 17th. For more information, contact Mark Bernstein, CERG Growth Consultant at mbernstein@uua.org. For more information about Sally, log on to her website at www.embracechildspirit.org.